Back in the hospital

So Monday was supposed to begin the IV high dose chemo. But, monday I was back in the hospital. Sunday night began as normal as usual. I had started feeling a little weird. I started having little jerks in my extremeties, and having what I called brain hiccups. These are where I'd be in mid-sentence, and my brain would hiccup...meaning I would have no clue what I was trying to say. So, I was back in my bed room, watching TV, and the next thing I remember I was laying on the floor with my mom and grandparents standing over me. Apparently I had had a seizure. So, mom and I gather up some things and head to the hospital. Apparently with the oral high dose chemo there is a 1 in 10 chance of causing a seizure. Well if you've been following this blog along, I am the 1 in 10.

In case some of you didn't know, I grew up with epilepsy. But I eventually grew out of it. My neurologist and I agreed on this after I had graduated out of college. Well I saw a different neurologist yesterday, and I didn't like him. He said that chances are I've just been lucky and haven't had a seizure in the last 7 years...which seems like a crock of shit to me. So he recommended we be on a different anti-seizure medicine until after the transplant, and then I can make the decision to stay on it, or wein myself off of it for good. I can tell you right now, the decision is made. I'll be weining myself off of it when the time comes. I'm done with epilepsy. It just seems like a huge coincidence to me that for 7 years to have no problems with seizures, and then when we start pumping all these chemicals through my body...now we have a problem??!! Oh well....let me know what you think.

So, I'll be in the hospital until after the transplant, which luckily is still slated for Friday. I am wayyy ready to get out of here though. I want to be here....no more. I hate people asking me every 5 minutes when my last bowel movement was, and why I'm not giving them more pee. I just like living my life question free. Last night I was woken up every hour by the extreme need to urinate...that's not how I want to sleep...and that was with sleeping pills!!

Oh well, I'm done bitching. I can stil thanks God that I"m still on track for the transplant!! Although I would much rather not be in here...that is all!